Today began as any other weekday. 5:30 a.m. wake up, gather everything needed for Court and prepare for school. It had been a very long night for Courtney, lots of small seizures and not much sleep for either one of us. As I looked down at her sweet face, at peace and sleeping very soundy, I knew that the day would not go as I had planned.
How could I wake her up and disturb that peace she had worked so hard to find. So I called the school and we stayed home. Jerry is traveling this week, so it's just me and my girl. I crawled back into bed after giving Courtney her meds and we slept a few more hours.
Later, with tea in hand and a yummy toasted bagel for breakfast I sat to write for a bit. Well, Courtney had other plans. Not the kind either of us wish for . She has struggled a bit in the last few days with seizure control. So after some shake, rattle and roll she fell asleep again.
I started thinking about how we never really know how the day is going to go. We plan and make lists. We confirm appointments, gather and prepare for what we have on tap and then something out of the blue happens and it takes your breath away with the sudden shift. That's what living with a child who has seizures is like. Be prepared for anything, anytime, anywhere. Expect the unexpected.
I am at times lulled into a sense of complacency with the rhythm of life and then Courtney shows me that life is to be lived one day at a time, sometimes one hour or even one minute at a time. So we go together, hand in hand, anywhere she needs me to be.
Today we followed a new path. Who knows what tomorrow will bring. With a calm spirit and a peaceful heart, I will follow my girl wherever she leads me, always looking to the heavens for guidance and peace. Jesus, I trust in you.
Labels: Courtney's World