where are we now?

LOVE this smile!

Well, Miss Courtney continues to challenge the finest medical minds. We began this weight gain journey in March and continue to climb the mountain one pound at a time. In the past eight weeks she has gained a total of 4 1/2 pounds and lost 1 pound leaving us with a 3 1/2 pound total gain. We continue to adjust her g-tube formula and overall diet plan to maximize the calorie profile of each feeding. Her seizure's have returned giving us, on average, two per day. They are rough ones with about 10 seconds where she turns blue. There is nothing that can be done except to pray for God's continued protection during those seizures.

The docs continue to monitor her blood work for some indication of an absorption problem and have begun further testing specifically looking at her intestines and how they function. In between feedings and seizures, Courtney is enjoying life. She is alert and happy. She loves her books on tape and will listen to Steven Curtis Chapman for hours. I cannot tell you how wonderful it is to hear her laugh. Such joy fills my heart each and every time!

Biggest lesson learned? Accepting the isolation and emotional suffering that has come with this particular medical challenge has lead to some beautiful moments with My Redeemer. His GRACE is enough, always and forever!

Jerry and I continue to rely on your prayers and God's providence in Courtney's life. This is going to be a long haul and we are so grateful to not be walking alone.

Blessings and Grace,
Mary