It's been a few weeks since I have participated in {pretty, happy, funny, real}. I will admit to being slightly overwhelmed with day to day life with the lovely Miss Courtney. She has does amazingly well on her new seizure drug and even though she still has seizures, they are no longer happening on a daily basis. This is just such an incredible turn around for us. There really are no words my friends. God has a plan for this beautiful soul and His time is perfect time.
So I am trying to figure out a new routine that allows plenty of time with Miss Courtney to do her therapy, follow her feeding schedule and makes sure she is not bored now that she is home full-time. Before we took her off the Depakote, she slept so much that When she was awake, I spent all my time with my hands on her, reading to her and doing her therapy.
Now she is awake at 6 a.m. and doesn't go to bed until 9 p.m. She doesn't always take a nap so I need to figure out the steps of this new dance. Some days I feel like I have it down and then there are days like today when I stumble and fall flat on my face, feeling like all I ever say to her is "I'm coming Court" or "Be patient kiddo. I'm almost done." I need to figure out how to balance time with her and time working on my household chores let alone any creative pursuit.
I have also been struggling with contentment with how my home is decorated or not decorated as the case may be. I have so many ideas on what I want to do but the bank account is quite low these days so anything we do has to be very DIY. This is when my internal perfectionist starts screaming at me that I can't do it or it won't turn out right and then I just get overwhelmed with the idea of failure ... so nothing gets done and I feel worse...and then it starts all over again on the next project I want to do. So my house is filled with lots of unfinished projects.
So contentment isn't always present but I will get there...when I can get that inner critic to hush it...one completed project at a time.
This weeks installment is called the "Starburst Edition"...the photos below explain...enjoy...
{pretty}
We went to visit Courtney's former teachers at the Kilmer Center this week. It was so wonderful to see the staff that loved our family for seven years and took care of our Courtney. I am so happy I got this photo of Miss Courtney and her two favorite teachers Miss Betsy and Miss Hye.
After we visited Kilmer, we met up with Miss Pam at Georgetown for her weekly physical therapy session. She actually loves going. It must be the stretching and back rubs.
{happy}
One of her favorite things to do at school was to swing. She loved the slow and gentle pace of her favorite red swing. So happy she got to spend some time in it once more. I so wish we had one at home.
{funny} I love this look on Miss Courtney's face. She makes it all the time throughout the day when she is particularly happy. She taps her hand on her mouth and then those eyes goes a little cross-eyed. She makes a very distinctive "wooing" sound to go along with it. I love this face...so goofy and funny...just like my girl.
{real}
My husband says that I have an addiction to very colorful clothing. I guess I do but I love happy colors and when I saw these socks at the mall AND they were on sale, I knew Miss Courtney needed them. Jerry said she looked like a Starburst. I love it!!
~ Capturing the context of contentment in everyday life ~