humor, hope and pajama days...

Yesterday was tough. I so appreciate all of your prayers not only for me and my Courtney but my sister-in-law and brother as they come to terms with this difficult diagnosis. 

I didn't sleep much last night, too much heart ache combined with a stuffy nose and headache left me awake, pondering and praying for them and for all of you who have sent me your hearts desires.

Oh my friends if you knew how privileged and honored I feel to lift you all and your needs up in prayer to Our Lord. Especially in the middle of the night, when sleep escapes me, to honor each of your requests. It is a true gift to me. Thank you so much...thank you.

Today began with a phone call from my sweet friend and critique partner Sharon. She has hot coffee and she was coming by to chat and make sure everything was OK. It didn't matter that I was in my bathrobe, hadn't brushed my hair or my teeth, none of that mattered. She was coming with coffee.

So bundled in my fuzzy pink bathrobe and my comfy slippers, hair unbrushed and teeth unclean, we sat on my front porch while Miss Courtney slept snuggled down inside and talked for two hours all about life, love, family and writing. It was the best two hours I have had in quite some time. Thank you Sharon...thank you.

Once I came inside, folded another two baskets of laundry, got Miss Courtney up and fed her some wonderful oatmeal and then sat a read a story or two. Afterwards she smiled for the first time in days. I grabbed my camera and snapped one or two photo's knowing I would share them with you.

That smile is what gets me up in the morning. I so love it when she laughs for me. It makes my day. She is such a gift to me and those who share her daily life. Even when things get difficult, she soldiers through and in the end we search for a cheerful place to be. It's what we do, Miss Courtney and I. We try to find the happy everyday. Life is short. We need to love as best we can and find that illusive place that makes us smile.

I decided soon after that today is a pajama day for us. No worries, so stress. Just cuddles on the sofa and stories read. Laundry folding and knitting needles working. Simple and calm. I need simple and calm today. Hubby will be bringing home sandwiches for dinner and then it will be an early bedtime for everyone.

Courtney's seizures have returned, not surprising but tiring nonetheless. She fights hard my girl to breathe through these attacks. Today is no exception. One day at a time is how we walk. Her sinus infection seems to be under control and her lungs are still clear. The diapers are still icky and her bum is a mess with a wicked rash, but that will take time to heal.

I will admit that I am kind of over the whole laundry thing...waaayyyy over it to be honest. But such is life.

God's plan might be confusing at times and heartbreaking at others but He is here. He is with me and my girl. He is with you and hears your hearts desire. He is with Nancy and Andy and their sweet baby girl. He loves freely and for that I am so grateful. I am blessed and strengthened by His enduring love.

Today is filled with a little laughter from my Court, pajama's for me and hope for no icky diapers the rest of the day, tomorrow or at all...and no seizures...that would be nice too.

Happy Tuesday!

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