Coffee for Your Heart #15 from
Mary Lenaburg on
Vimeo.
** update at 5:15 p.m. EST **
Calling ALL prayer warriors - just talked to the Neuro Doc and we need some serious prayer support. VA Medicaid has asked for more documentation in regards to her ONFI seizure meds. They are really pushing back on paying for such an expensive med. Courtney has been on it for a year with no problem but with new regulations come new issues. This med saved her life last spring. I cannot imagine her daily life without it.
We will cut her dose in half tonight and by Saturday she will be off of it completely if they keep dragging their heels. This could be disastrous for our girl. Can you say intractable seizures?? Hospital stay?? Ugh!!
We cannot afford this med on our own, not even close. So please send up some prayers on our girls behalf over the next few days. This is going to be tough. Thanks!