Taken with Daddy's iPhone right after they took the oxygen cannula off. Happy Girl! |
Ha!
Miss Courtney had a different plan.
I am a substitute teacher at Courtney's school. Right after lunch I was called to her classroom because she was having a seizure, her second one in 30 minutes. I went through my checklist and discovered she was a little warm. So we called the school nurse who checked her and determined she was running a low grade fever.
No worries...it happens sometimes.
Then she had another seizure. As her teacher and I were watching her, the little alarm bell in the back of my head started to go off. Something was not right but there were no tell tale signs of what the culprit was other than the low grade fever. Courtney was not giving any indication of being uncomfortable in any way so that didn't help.
One thing I have learned in 18 years of parenting this child through thick and thin, is when that alarm goes off, I listen. Boredom was NOT to be on my afternoon's agenda.
I called her doctor and was able to get her an appointment two hours later. I bundled her up and we left school. In the car she had three more seizures. My alarm bells were now shrieking loudly. Once we arrived at the Doctors office they took us right back and the troubleshooting began.
ears - clear.
chest - slight rattle but that's normal for Court who has mild pulmonary lung disease.
no rash.
tummy - a little sensitive to touch and Miss Court wasn't happy with that manipulation.
throat - a little pink but that's normal with all the saliva she creates and aspirates.
bowels - all good and no discomfort.
We were out of things to check for. We had a sensitive tummy, a slightly pink throat, a low grade fever and "little junk" in her upper respiratory cavity. So the doc suggested we head to the ER for blood tests, a flu test, a chest x-ray and also check for a urinary tract infection. There was nothing else we could check for in the peds office, and she continued to have cluster seizures.
Off to the ER we went. She had four more seizures in the next 45 minutes, each lasting 5-6 minutes. Something was going on and I didn't have a clue what it could be. I just knew we had to figure it out soon because the seizures were getting worse.
Upon our arrival at the ER given Courtney's seizure history, they took us right back. This is one of the few perks of her condition. No waiting in the ER. Hey, I'll take what I can get! We met the nurses and the doc and during our intake exam Courtney had another seizure. THAT got their attention and they moved like lightning.
An oxygen cannula was placed on her face, an IV in her arm, fluids were administered, Ativan given to stop the seizures and lots of questions being fired off by the team to me trying to get a grip on the situation.
Once again, I was Courtney's only voice, and in these situations, there is no room for mistakes. It is stressful and intense. When it's over it makes me want to eat gallons of Ben and Jerry's Ice Cream to calm my nerves and mend my heart.
Sorry, no perfection here. Just honesty.
They got her seizure stopped, everyone took a deep breath and the troubleshooting started all over again. There were blood draws and a urine specimen taken. The swabbed for the flu and just to be safe, for Step as well. The Doc poked and prodded, Mom soothed and sang, Dad paced and waited. Then waited some more.
Courtney slept a little and hummed a little. Mom prayed A LOT. Three hours, 5 blood draws, one catheter, and one bag of IV fluids later we had our answer. Strep Throat.
Seriously? All of this trauma and drama for Strep Throat???
Yes, God does have a sense of humor and my daughter has no immune system to speak of. Her throat was slightly pink and she was already reacting badly to the stress on her system.
After her diagnosis, things got even better. The ER sent us home with the wrong prescription, a narcotic for back spasms NOT an antibiotic for Step.
Oh yea baby, gotta love my life!
After another call to the ER Doc courtesy of our pharmacist, we finally arrived home and I have sufficiently buried my frustration and worry in a pint of Ben and Jerry's Coffee Heath Bar Crunch!
We're going home...Momma and her girl. |
Nope. No boredom here. EVER!
Oh happy Wednesday!
How did your day go? Anything exciting happen in your world?
OMG Mary!! What a day you have had!! Prayers and Hugs coming your way!!
ReplyDeleteKathy :)
I knew the ending and yet I was panic stricken by the four 5-6 minute seizures in 45 minutes. Mary you are amazing, I would have had lost it (which I realize is the last thing that Courtney needed). And for the record, no waiting in the ER is not a perk. This is when I wish I lived closer and I could give you a break. You are amazing. And thank God Courtney is ok.
ReplyDeleteThanks Ladies! Your prayer and encouragement are all the help I need. God takes care of the rest. Thank goodness for that cause i've got nothing left!
ReplyDeleteBlessings and Grace...
My heart goes out to Courtney. I will pray for her.
ReplyDeleteThank you Lori. Your prayers are so appreciated.
ReplyDeleteMy prayers are heading to Courtney and the rest of your family.
ReplyDeleteOne of my children was in the ER numerous times and hospitalized 3 times in a month when no one could figure out what was going on. Nothing like being readmitted minutes after discharge and getting your old room back since they hadn't even cleaned it yet! Yes, seeing the child experience what you desperately try to describe sure gets their attention! And, the pressure to answer every question accurately while you are worried about your child. I'm guessing you've been down that road many times. But after having lived it for only a short time myself, my heart is still pounding for you even after seeing the outcome.
I pray tomorrow you have your peaceful boring day.
Ughh!!!!!!!!!!!!! Glad your warning bells went off early and you got her to the docs before it got worse. Poor Girl, I hope she is better soon. And I 100% understand about the Ben & Jerry's, they're the best! I had a pint the other day in honor of my anniversary,
ReplyDeleteYou're in my heart and prayers.
Even though I found out the next day, please know that God doesn't live in our 'time' and that we will be storming heaven on Courtney's behalf. We want that 'boredom' back! We will pray for that nothing else happens and no more complications!! Keep us posted!
ReplyDeleteMany prayers for Courtney (and family). She DOES NOT look like a girl who just had multiple seizures, with that great smile on her face! I hope she feels better quickly and that smile stays!
ReplyDeleteBetsy - she was SOOOO happy to get that oxygen off her face, she just beamed! That's my girl, she knows what she wants and she wanted that thing off! LOL!
ReplyDelete